Friday, October 5, 2012

Cancer: Straight Up and One Year Later

I rub my hand absently up and down the scar on my neck; it's a habit I've developed over the past few months.

It's still fairly numb on the surgery site, slightly itchy and sometimes painful.  Not really painful, but little tugs that whisper in my ear: remember me? 

One year ago, I wrote this about finding the lump in my neck during Finn's karate class. Even though I was far from diagnosed with cancer, I knew. I knew in the deepest part of me that it was cancer, and that I was in for a long journey. I had been a hypochondriac for so long, every little ache and pain was cancer in my mind, that I don't think many people took me that seriously, but I knew.

My primary care doc thought it was a lymph node responding to some kind of infection. Even the ENT specialist I went to - even after a needle biopsy that revealed mostly fluid - didn't think it was cancer.

"If you feel that strongly that something's wrong," he said, "we can go ahead and take those tonsils out and see what we're dealing with".

I wanted - with every bone in my body - to say "never mind".  As I've written about here often, I had a lifelong phobia of cancer, way deeper than your average fear of it - and I wanted nothing more than to leave his office with a big PHEW.

I didn't, because I knew.

During the tonsillectomy they found a 4 cm tumor behind my left tonsil, which had spread to my lymph node (giving it the even scarier "Stage 4" diagnosis).   And my cancer journey began.

I wrote my way through the cancer, you can read all about it here if you want, so I'm not here to write about what I went through.

I rub my fingers up and down my scar and I think: that was a hell of a year. 

I always thought cancer was a death sentence, hence my phobia.  That even if you made it to remission with your first diagnosis, that eventually - no matter what - cancer was gonna getcha.

I'm in remission now, and I'm here to tell you that cancer is far from a death sentence.

For me?  For me cancer is a life sentence.

Cancer rattles your cage, tips your priorities and fears and loves and work and kids and joys all around, makes them an unrecognizable jumble.  It shakes you to your core, burns every secure wall you ever built around yourself right to the ground, leaving you feeling naked, exposed and completely at the mercy of others.

For someone like me, who likes to be in control, who is the healer of others' woes (at least in her own mind), who wants to be out there, involved, busy - too busy if I can manage it - standing there shivering without my walls was horrible.

Until it wasn't.

Sometimes you have to burn it all to the ground to build it back up the way it is meant to be, cancer and all.

I stopped living in fear, and started simply living, for perhaps the first time in my life.

I do not mean to imply that the journey was all graceful realizations, deep appreciations of all I have in my life and gratitude.  It wasn't.  I had my fair share of snotty, puffy eyed crying jags, shaking my fists at the heavens and wondering why?

The clouds always parted, though, to reveal things I needed to learn about myself, my life, my priorities.  To teach me to love more deeply, feel more honestly and access hard emotions I'd always kept tucked neatly under my gigantic To-Do list.

Cancer stops you right in your tracks, and forces you to look deeply into yourself, to love yourself enough to let people help you, to lie back and let it all come, to peel your hands off the steering wheel of the life you thought you were driving, but never really were, anyway.

It forced me to make conscious contact with my faith, in a meaningful and deeply personal way.

At first cancer was all about fear and dying.

Until it wasn't,

Until it was all about faith and living.

29 comments:

  1. Absolutely! And now that we start celebrating the birthdays of being in remission from cancer (and fear!), may we never be in remission from faith and living - may those just keep growing within us nourished by God and our good efforts until we are done here - every day a gift to unwrap! It's not a cancer journey after all - it's a life journey to be treasured with grace and gratitude!

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    1. Thank you, Steve, and thank you for being one of the people who helped me see this about cancer, with your patient, warm words of advice and comfort along the way. I'm so grateful for you. Truly.

      -xo

      -Ellie

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  2. Two years ago I had a cancer diagnosis, which, after the cancer surgery, was declared "not cancer". I don't talk about it much because three weeks of thinking you have cancer isn't the same as real cancer and I know far too many people who have had the read deal. But I know exactly what you mean about feeling the scar.

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    1. You know the fear, then, too, and that is enough to rattle anyone's cage for a long while. Even if you don't talk about it much, I bet in changed you in some ways?

      And the scar is always there, of course, to remind you. Some days I'm glad for it - others, not so much - but that's just the way life goes.

      -xo

      -Ellie

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    2. I definitely know the fear. And it did change me, no doubt about it. I hated my scar when I first got it-- it was so aggressive-- but now it doesn't bother me.

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  3. What a powerful post! My sister in law had breast cancer a few years ago, and I was so in awe of the strength she showed during those long months. So glad you listened to that little voice inside your head that told you to get it checked out as soon as you did.

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    1. Yes - for anyone out there with "little somethings" that they have an instinct need to be checked - CHECK them. I know how scary it is, but after living in the cancer world for a year the odds of having a good outcome are SO MUCH HIGHER with early detection. For any type of cancer or disease. And, oddly, knowing was (for me at least) less scary than not knowing.

      Thank you for your comment!

      -Ellie

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  4. "I stopped living in fear, and started simply living, for perhaps the first time in my life."

    Thank you for this Ellie. You know I was misdiagnosed with cancer in August. One of my pre op tests showed something that needed further investigation and I chose the most invasive of the choices they gave me because I just didn't want to ever have that lump be in question again.
    Last week I had it out and this week they told me it was cancerous - that without the misdiagnosis and the tests that came as a result of that they wouldn't have found this lump for another year.

    I really needed to read this post. The sentence I quoted above is one I am in the process of learning to live. Thank you. Big hugs across the miles.

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  5. Hope - I'm sorry for your diagnosis (and I know "I'm sorry" is such a small thing to say in the face of something so daunting, but I really am sorry). You are strong and graceful and your faith will carry you through the journey. I am here if you need to talk/vent/cry/ask questions - any time.

    While I'm sad you have to face this, I'm so very grateful they found it when they did. A year can make a big difference not just in the outcome but in the intensity of your treatment.

    You are in my thoughts and prayers, big time.

    -xo

    -Ellie

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  6. It is ... until it isn't. I love this concept! Thanks for sharing that hard-earned wisdom. <3 & ((hugs)).... me

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  8. Ellie, you're so warm, so wise, so wonderful. Ironic to learn about your cancer phobia--I had the same thing since my mom died of melanoma when I was 18---ran to doctors and checked every spot and bump on my body for years. Then when I least expected it--and where I least expected it--there it was, in my breast.
    In a strange way, it was what I'd been waiting for--the realization of my greatest fear. And facing my greatest fear did change me in profound ways---as you do such a beautiful job of explaining. Thanks for putting into words feelings that are so difficult to explain or express. You're a treasure.

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    1. Thank you, Darryle, my new friend and soul sister. It's good to know you understand how I feel.

      -xoxo

      -E.

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    2. I always thought cancer was a death sentence, hence my phobia. That even if you made it to remission with your first diagnosis, that eventually - no matter what - cancer was gonna getcha Homepage

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  9. This post is beautiful, grounding, true. Reminds me of Byron Katie's segment with the cancer patient and the series of questions, "Is that true?" The video segment came to mind as you unfolded your story and began living. Powerful.
    I'm so glad I stopped in, this post is very heartwarming, that despite struggle, we still live. Thanks for the reminder, and the blessing of this moment.

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    1. I will have to look up that video segment - I hadn't heard of it before - hopefully I can find it online???

      Thanks for stopping by, and for you lovely comment.

      -xo

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  10. Here's to a whole new crop of wild flowers after the big burn. xoxo

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  11. I read this and am so happy that you are on the other side of this struggle. And I wonder, since I'm still an active alcoholic, why am I still active in this disease, one that I could just stop vs having cancer which would be so out of my control?

    Sigh.

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    1. Chella - it's my opinion that you have no more control over alcoholism than you would over cancer, diabetes or any other chronic disease. Alcoholism is classified as a disease - alcoholics have a physiological reaction to alcohol that is different than non-alcoholics (like an allergy). It's just that alcoholism is all tangled up as a "choice" or a "moral issue" in so many peoples' minds. Just like you would if you were diagnosed with cancer, you can seek advice, help (medical help can be important, too) - in meetings, at your doctor's, therapist's or a spiritual adviser -- just get talking to people who understand and can help. If you have tried to stop and physically can't - I recommend getting medical help b/c alcohol withdrawal can be deadly (more deadly than heroin or pill withdrawal, interestingly). And getting medical help may dramatically improve your chances of success.

      Control has very little to do with stopping drinking. Surrendering does. That is hard to understand, I know, but once you give up and let people help you, you can start to heal.

      -xo

      -Ellie

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    2. Thanks Ellie. I once had almost 4 years sober and have gone to treatment and then had 5 months. I have been back out for a year and know I must get back to the meetings. You're right about the surrender. It is difficult.
      I appreciate your response and so enjoy your blogs.
      C

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  12. So beautiful, Ellie. As always, so gratful for your words.
    Here's to a happy "new" year!

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  13. I love that you followed your gut. Many people would have given into the 'I'm sure your fine' well-wishers. SO glad you didn't. You're an inspiration, truly.

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  14. I really adore your work...I too am a cancer survivor and blogger, and just this week blogged about living from the why? to the because. I love what you said about loving yourself enough to let others help you. Hard for us stubborn know it all girls to do, but I am here and you are here and all is good and the lessons were learned.

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  15. My goodness, what a post. I have to quote the same line Hope did:

    "I stopped living in fear, and started simply living, for perhaps the first time in my life."

    You're a real power of example, Ellie, taking the risks, exposing yourself and making vulnerability look...desirable?? That image of you standing naked with all the walls burned down around you...owwwww. And yet, what's the alternative? Fakery? Control? Reading this reminds me that the worst part of winter is bracing myself against the cold. When I relax and feel it, it's just not that bad.

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  16. You are so amazing. From another woman who has also survived two potentially fatal diseases (addiction and cancer), I salute you. I acknowledge your depth and your warmth. Your joy and your love. Thanks for all that you do for women suffering everywhere. We do recover. Love ~Dawn~

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