Showing posts with label parenting. Show all posts
Showing posts with label parenting. Show all posts

Thursday, October 24, 2013

On Motherhood and Alcohol

This week has been nothing short of miraculous.

Here's how that past five days have gone down:
  • My husband is away on his annual fishing trip
  • My son threw up all night on Sunday
  • I got a bad chest cold with a hacking cough that robbed me of what little sleep I could have gotten.
  • My daughter threw up all night on Tuesday night.
  • The Sox won the ACLS, and played the first game of the World Series.
So why is this miraculous?  It sounds like a tough go of it, doesn't it?

Because any ONE of these things would have been something I drank over, in the past.  The biggie would have been my husband going away.  When he was gone, I could drink more than one or two glasses of wine without being sneaky about it, or making up excuses.  And heck, when he was gone life felt harder ... I deserved it.

Sick kids was another reason to drink.  Long nights, exhausted days. Having a child home all day for four consecutive days on little or no sleep.  Falling behind on work.  Also reasons to reward myself with a few glasses at night.

Even being sick myself was a reason to drink.  Wine is a great cough suppressant (or, at least it made me care less that I didn't feel well). 

And I used to love it when Boston teams made playoffs, not as a sports enthusiast but because then everyone pretty much drank like me.  It normalized my drinking. 

It is nothing short of a miracle that all these things happened in the span of five days and not once did it occur to me to drink. 

I thought wine made me more patient, more loving in the face of long days and hard nights.  I thought drinking both dulled down the tough stuff while enhancing the fun stuff, like playoff games.

I was wrong.

Caring for sick kids totally sober and present is so much better. I'm not itching to duck away and take a sip of wine. I'm not cranky and short, nursing a headache the next day.  My patience is - surprisingly - infinite.  I am calm, grounded, and collected.  

Instead of feeling sorry for myself that I have to go through all this without the help of my husband, I am totally focused on them and their care.

And who knew that watching playoff games was more fun sober? 

Sometimes I forget to remember that recovery is a miracle.  I forget to shout from the rooftops that recovery HAPPENS.  We do heal, and we can handle so much more sober than we ever could drinking, and it's better.  So, so much better.  

We live in a culture that tells women, and especially mothers, that drinking is their right, dammit, for all they do, all they juggle.  Moms talk all the time about deserving their wine at the end of a long day - whether they work outside of the home or not.  You don't have to look further than Facebook to see women talking up their hard earned glass of wine.

I am not saying that everyone is an alcoholic.  Indeed, for normal drinkers who actually can have a glass or two now and then, why not?

But with all the marketing and publicity about women and their wine, it has become almost the norm for women to use alcohol as a coping mechanism.

Before you shoot off that email to me saying you enjoy your wine and don't use it to cope, or leave a flaming comment that many people drink normally and I'm generalizing, think about how often you hear women talking about alcohol as a reward.  I know, I know - men have been doing this for years, so it's unfair to pin this on women just because they are also mothers.

But here is the reality: most women still have primary care giving responsibility for kids, even if they work outside the home.  The pressures and expectations put on women are different than men.  The marketing messages are different, too: you are supposed to do it all, and do it with a smile on your face. You deserve this.  Alcohol will help.  We live in a culture where alcohol is marketed to women as a way to cope and/or enhance.

Take the wine "Mommy Juice".  Here is their label:


A woman managing all her responsibilities: work, housework, cooking and kids, with a serene smile on her face.

Here is the first paragraph on the splash page of their website:

"Being a mom is a constant juggling act. Whether it’s play dates and homework, diapers and burp cloths, or finding that perfect balance between work and home, Moms everywhere deserve a break. So tuck your kids into bed, sit down and have a glass of MommyJuice — because you deserve it!"

The bold print is not mine; it's theirs.

And there is Girls' Night Out wines:

"When women get together, curious things happen. There are unwritten rules that we all follow. It’s a club that you can only be part of as a woman. And all are welcome. We talk, we laugh, we eat and we drink, but we also support, encourage, applaud and share. It is for this inclusive club for women that we created Girls’ Night Out wines.
 
Whether you’re going out to meet with your book club, having a pot luck dinner, getting ready for a night out on the town, or staying in to watch a DVD, Girls' Night Out goes with anything."
 
Hey - at least they are being up front about a phenomenon that is everywhere.
 
I am not naïve enough to believe this is going to change, even in the face of really alarming statistics about women and drinking, and the sharp increase in binge drinking among girls.  Whether we realize it or not, the message that wine is a coping mechanism -something to help us tolerate them - is reaching our children. 
 
I understand why women prickle when it is implied that their drinking may impair their parenting. After all, we don't hear that said about men, do we?  

Men have been marketed to all along that they deserve their cocktail for all their hard work.  It's just that parenting isn't thrown into the mix.  And certainly no company ever marketed to Dads that alcohol actually enhanced their parenting experience.

So why is this so dangerous for women?
 
The scary truth is that alcohol effects women's health far more than men's. We weigh less and have more body fat, which means we metabolize alcohol differently.  Hormones also impact how alcohol effects our bodies.  Simply put, we can't drink like men without suffering dire health consequences.  Alcohol is a carcinogen.  It is linked to breast cancer and heart disease (despite the campaign that moderate drinking of red wine is good for your heart .. that is only if you drink one glass every other day). 

Saddest of all, I think, is that alcohol disappears us.  Instead of making us more present for our children, or more patient, or more loving, it is doing the opposite. You don't have to be an alcoholic to have this happen.  The message by marketers tells us that it's making us better Moms, when in fact it's doing the opposite. 

And our kids are watching.  You don't have to be an alcoholic, or even close to it, to be less present for your kids through drinking.

Mainly I just want to add my voice as a counter-balancing point to all the marketing about how alcohol makes our lives better. 

As a woman and mother in recovery, I am here to say it doesn't.  It temporarily alters our reality, which isn't inherently a bad thing.  But the message that somehow our lives are better with a glass of wine is just wrong.

~~~~
 
Most of these thoughts are sparked by Ann Dowsett Johnston's new book, Drink: The Intimate Relationship Between Women and Alcohol..   She is an incredible writer, and her book is a terrific combination of story-telling and facts.  She writes about The MommyJuice and Girls' Night Out marketing campaigns in her book - I would never have known about these (because I don't buy wine anymore) otherwise.  I highly recommend her book - whether you are in recovery or not.  Every woman, every Mom, needs to hear what Ann has to say.  I was not compensated in any way to say this - she did send me a copy of her book to read but this is not a sponsored post.  And the prologue to this book is, quite simply, the best description of addiction I have ever read. 

I am excited and honored that Ann will be a guest on The Bubble Hour on November 10th, so please tune in!

Wednesday, July 3, 2013

Through The Looking Glass

I have always loved the number four.  I'm not sure why - my own little touch of OCD, I guess.

Any time I'm picking a number - for anything - I choose four, a number that ends in four or a multiple of four.  A seat number in an airplane or setting my alarm clock (7:04am), for example.  It simply HAS to involve the number four. 

It's been going on since I was a kid - as young as nine or ten - my own little attempt at feeling some semblance of control over my increasingly complicated world.

Tomorrow I turn 44 on the 4th.  That's a lot of fours.

Last night the kids broke out our home movie collection and we sat on the couch and watched our lives from when the kids were babies, toddlers and into their preschool years.

I watched with a mixture of joy and sadness - wistful for their chubby-cheeked youth, for what looks on the screen as a simpler time, but I know differently.

There is Finn in the tub when he was just learning to talk - I'm holding the camera in one hand and bantering with him about his rubber ducky.  He laughs, flashing his two little bottom teeth, just poking through.  "UH-OH," he says, as he plunges the yellow duck under water. "Ducky needs HEWLP"  It looks for all the world like an ideal scene of mother and child bonding. 

But I know that perched behind me on the edge of the sink is a wine glass.  Bath time back then was never done without my liquid assistant.  The days felt interminably long, boring. 

My gut churns as I watch Greta, pigtailed and adorable, coloring and chattering on about her picture.  I'm laughing behind the camera, egging her on, zooming in on her brow knit together in concentration.  I remember what I was thinking, back then - that I was recording for posterity that I was a good mother, not a drunk.  Not an alcoholic.  I was desperate to prove to myself and anyone watching that I was loving, engaged.

I watch the images flickering on the screen and my heart aches.  Shame burns somewhere deep inside, at the very root of me.

How could I not see, I wonder, how blessed I was.

Another disc, fast forward about a year.  Finn is almost two and Greta is almost five.  It's April of 2007.  Steve is filming what looks like an adorable family breakfast scene; Finn happily smearing oatmeal in his hair, perched in his high chair, Greta next to him, prattling on as usual.  Then Steve swings the camera my way, and I'm leaning on the counter, looking weary and bloated. 

"There's Momma," he says.  "She was partying last night, weren't you Momma?"

I cast the camera an irritated, sheepish look.  "Yes," I whisper.  "Stop filming me, you're making me uncomfortable."

I look into my own eyes and want to scream at my visage STOP.  Stop what you're doing, stop sliding down into your own destruction!!!
A mere two months later and I'm conspicuously missing from the videos.  It's summer of 2007, and the kids are at the zoo, the Museum of Science.  My sister-in-law balances Finn on her hip and laughs as the cousins squeal in delight at otters rollicking in their tank. 

I'm not there.  I am in rehab.

A little later, and there we are again, happy kids with a sober Mom.  Finn is closer to four now, Greta is almost seven.  I no longer need the camera lens to prove that I'm present in my life and theirs.  I am slender again, bright eyed and happy. 

But that knot in my stomach as I watch doesn't loosen, and I still want to scream at my image:  be grateful for all you have - ahead of you are some rough waters.  You are going to lose your Dad. You are going to get cancer. 

PAY ATTENTION, DAMMIT.

But that's the thing, isn't it?  Paying attention?  Recognizing how fleeting moments are, even the ones that feel like they last forever?  The long, ordinary days that feel like duplicates of yesterday?  The constant-ness of parenting, laundry, cooking meals, all the mundane rituals that wear you down?

I'm not particularly afraid of getting older, even though the idea of being forty-four seems incredible to me; I feel about twenty eight mentally. 

What jerks me to attention is the idea that life zips by, right under my nose.  The days roll into one another, virtually indistinguishable.  Every now and then something jars me out of my day-to-day existence - something wonderful or something scary - but for the most part forty-four years flew by. 

Why is it so much easier to lose myself to fear of what may be lurking around the corner?  It is far easier to have faith in fear, instead of just plain faith.

Back when I was a drinking Mom, I felt like I was watching my world through dirty glass - there, but not there.  I felt one click removed from everything - my family, myself.  I numbed out the uncertainty with one more glass of chardonnay.  And then one more.

Being sober is scarier - the uncertainty is pointier, right up in my face.  I don't hide behind liquid anesthesia anymore, and I feel scared more than I ever did when I was drinking.

But here's the thing:  the dirty glass is gone, too.  Even fear is a real emotion.   I am present in my life.

Looking at the un-sober me on the screen, faking normalcy, wishing with all my heart I was someone else - anyone else - because I didn't know how to be, I feel sorry for her, but I realize she is a necessary part of who I will become.  I mentally wrap my arms around her and forgive her. 

Maybe that's the trick to paying attention.  Constantly loving who we are today, forgiving the person we were yesterday - the one that didn't know what was coming down the road, or who made poor choices. 

Or maybe now we're struggling, and we look back at our former selves and think: man, she had it all together. What happened to me?

Life happened.  Life happens.  The only moment we have is this one, the one right under our noses.

This person right now, today, on this last day of being a forty-three year old wife and mother of two -  she only knows what she knows right now, in this moment.  Regretting the past, or worrying about the future brings back the dirty glass, the one that prevents her from Paying Attention.

It would be nice to believe all those fours - 44 on the 4th - will keep me safe, make for a great year.  But the thing is?  It's a great year already. 

No matter what.

Thursday, April 25, 2013

All The Things*

The bus rumbles away and I walk into my house and stand there in a daze.

I have so much to do I don't even know where to start.

My life is very full at the moment, brimming over with amazing endeavors, and every minute of every day is jam packed.  I'm loving my new Arbonne business; it is connecting me to old friends and making me new ones at the same time.  My jewelry business is thriving, which in turn raises funds for Shining Strong, the new non-profit I launched last week.  I realized recently that I'm running four websites along with my three businesses.  Add the hectic schedule of two school aged kids, running a household and trying to maintain my self-care regime to the mix, and it gets overwhelming. 

Someone I just met the other day asked me what I do for a living and I just stood there, open mouthed, unsure of where exactly to start.

"I'm a Mom," I said, because it seemed simplest.  As the words left my mouth I felt a tug of guilt in my gut. These days parenting is crammed into my schedule between the cracks of All The Things.

I'm happy - almost deliriously so. This, of course, makes my inner Panic Monkey nervous, waiting for the other shoe to fall.  Another inner tug of guilt: can't you just sit back and enjoy the moment? What is wrong with you? 

There is the undercurrent of anxiety of waiting for the follow-up procedure of removing more tissue around the site of Greta's suspicious mole.  She is an emotional roller coaster these days - up, then down - giddy with happiness and then crying for "no reason". 

I'm leaving tomorrow morning at 3am for a very early flight for a whirlwind trip to Las Vegas for an Arbonne conference, coming back on the red eye Saturday night. Tonight is a Book Club event with a local organization to talk about Let Me Get This Straight.

I'm not packed. I have orders to fill, schedules to button up for the kids and a mountain of laundry to fold.

I feel the stress well up inside me, threaten to burst through at any moment.  I want to curl up in a ball, but instead I find a quiet corner and focus on my breath.

Sitting still, I breathe in and out, and watch my thoughts float by.  All The Things tumble around in my consciousness: logistics, emotions, images of Greta's face crumpled with worry. 

Breathe, I think, even as my diaphragm tightens with anxiety.

My mind reaches back, mulling over where I was this time last year, weak from the cancer treatments that hadn't yet released their grip on me.  The stubborn lump in my neck was still there, more operations were needed.

A day like today was unfathomable back then.  A busy day last year at this time entailed mustering the strength to see my kids off on the bus.

I'm hit with the odd sensation that I kind of miss those days of forced rest.  I have such a hard time with enough.  Then, of course, guilt for even thinking this way.

Should I be doing this much? I ponder this thought for a while.  I realize the dreaded "s" word, should, has come back into my life.  Should took a hiatus during my illness, when the center of my universe was Healing.

The answer, I realize, is I don't know.  I don't how much is too much.  Is it because I'm an alcoholic?  Am I overdosing on busy?  Perhaps.  But All The Things are important, and I don't want to let go of a single one.

Just do the next right thing, my Recovery Voice tells me.   But they are all Right Things, my Panic Monkey protests.  Laundry? Orders? Dishes? Email? Meditation? Exercise?  Packing? How on earth do I know what to do?

I sit a while longer and wait for my mind to quiet. Eventually it slows, and I think:  write.

~~~~~~~

*All The Things concept credited to Hyperbole and A Half and her post "This Is Why I'll Never Be An Adult" - one of the funniest and most poignant blog posts ever.

Sunday, April 14, 2013

Zombie Cells and An Old Soul

I struggle with how much I can write about my kids.  They are 10 and 7 now, and while they don't object to me talking about them on the blog, yet, when something scary or sensitive comes up I don't really know where the line is.

When Greta was grappling with anxiety I posted about it, once, and received so much support and helpful advice, that my heart-gut wants to post about what is going on with her now.  But my heart-gut also says it's not my story to tell.

My mind has gone around and around and I've decided to write about it, because it's on my heart and I need to share.

Greta had a suspicious mole removed from her back a couple of weeks ago, and now it's come back as "abnormal cells with moderate to severe indication of melanoma".

GULP.

We're getting lots of advice from her dermatologist and friends about exactly what this means, how concerned we should be.  We know for sure she'll have to go back and have more removed, the usual procedure for anything suspicious.

But the "M" word? For my 10 year old girl?  It makes me want to curl up in a ball and ask someone else to be the parent.

Apparently this is genetic - not sun exposure. When she was 3 days old she developed a large mole and the pediatrician looked at me gravely and said "you're going to have to watch her skin closely ... this isn't usual for such a young baby".

So I'm crazy about sunscreen, sun shirts, doing everything in my limited power to protect her.

But DAMMIT. There is only so much I can do, of course.

Hopefully the silver lining will be that she will checked regularly, her whole life, and this will mean nothing scary can get out of hand.

But I don't WANT that for my kid, Universe.  We've spent the past year and a half in Cancer Land. I'm always going to be a denizen of that realm, and it's taking me a long time and a lot of hard work to come to terms with it for myself.

Please, please, may my daughter never have to live there, too.

This doesn't mean she has cancer or she'll ever get cancer.  My Mom heart soars into terror, knowing how aggressive melanoma is, even as I realize I'm overlaying my own traumatic past year and a half over her. She's not me. I know this.  But if I could jump in front of this bullet for her - even it's a rubber bullet that will only bruise her - I would.

This doesn't help her anxiety, either.  She's too intuitive, too nuanced, to believe my reasonably voiced assurances.  "This could be bad, right, Momma?" she asks, tears flowing down her cheeks.

"It's not anything right now, sweetie," I answer.  She asks more about cancer, and I try to make it simple.  "Cancer is a really scary word, I know," I say. "But all cancer really means is cells that change, and cells change for all different reasons.  And you have strong cells in your body that fight off that bad cells, too.  You are young and healthy and you don't need to be afraid", I say, convincing myself as much as her.

She is quiet a moment, and then she says, "Like Plants vs. Zombies?  The video game? I have some Zombie cells and the Good Plant Cells are fighting them off but sometimes they can't get them all and then they have to take the Zombie cells out?"

After my own stunned silence I say, pushing back tears, "Yes.  It's exactly like that".  Oh, my wise old soul little girl, I don't say.

Some prayers our way would be appreciated. I'm working on keeping my feet planted firmly on the earth, not letting the awfulizing cycle of bad-scenarios take up too much space in my head. 

This morning I watched her sprint like a gazelle down the soccer field, brown ponytail flying behind her, a big smile planted on her face as she lined up a seemingly impossible shot and BAM! -- she scored.   She high fived and hugged her team mates and looked over at us with a grin. There she is. I think.  My girl.  So vibrant and strong and full of life.

And today?  Today things are good.  If we stay in today step by step we'll work through this, like we always do.


Tuesday, March 5, 2013

Turn The Page

When the doctor told me that we were having a boy, my heart flipped in excitement and trepidation.

A boy to balance out our little family: one of each.

Greta was five when he was born, and I naively thought I had the "girl thing" down pat. 

But a BOY?  It seemed so foreign to me even though Greta was tomboy-ish; she loved dinosaurs and reptiles and fishing and getting muddy.  She never played with dolls, preferring instead to make up elaborate imaginary games with her Littlest Pet Shops.  Eschewing Polly Pockets and Barbies, she would play vet, or draw pictures bursting with color and story.   I never ceased to wonder at the power of her imagination.

Would a boy be different?  Would we be up to our ears in Legos, trains and toy cars? Would our long afternoons coloring and reading be replaced with building robots and smashing things into bits?

It turns out Finn, just like Greta, defied stereotype.  Thank God.  He is a complex, nuanced little character, full of sharp edges and puffy-heart kindness.


We dutifully purchased a train set, and gratefully accepted armloads of hand-me-down Legos.  They sat in the play room gathering dust for years before I realized they weren't ever going to be played with.  Christmas stockings brought Matchbox cars and action figures that were half-heartedly played with for one afternoon before being discarded.

It took a while to realize the stereotypes of what girls and boys are supposed to love is grossly, even insultingly, simplified.

Finn loves science kits - the grosser the better. He wants to be an artist when he grows up, and spends hours doodling, his tongue sticking out in concentration.  He plays dress up - sometimes in Star Wars costumes, sometimes in Greta's old princess dresses. It never makes any difference to him.

He's pig-headed, as stubborn as the day is long.  Try to correct or criticize him and you're in for a dissertation about all the reasons you're wrong.  When the storm clouds part, he will curl up in your lap like he's still tiny, nuzzle his face into your neck and tell you he loves you.

He wears his heart on his sleeve, this kid. Cruelty of any kind effects him deeply.  He loves playing with girls, he says, because they don't "try to be right all the time".  I refrain from explaining the concept of irony to him.

He loves gleefully, passionately and with reckless abandon.  He's never embarrassed by grand displays of affection.  I try not to dread the day this quality disappears.  Maybe it won't, but I worry it will be pushed down under layers of teenage cool-ness or angst.

He received a little spiral bound notebook as a gift recently, and announced he was going to keep a journal.  He dutifully wrote in it the first night: "this weekend I went skiing at Loon and I had a good time".    After studying his handiwork, he ripped the page out and crinkled it up.

"I'm going to make a journal about you and Dadda," he announced to me.  "Don't look."

The next morning he came downstairs grinning from ear to ear.  "You can read my notebook if you want," he said. "Just wait until I'm at school".

So I waited, impatiently, for the yellow bus to drive away.  I came inside and found this on the cover of the notebook (started on the back, because you can't write on the plastic front):

"Love, Caring, Happy, Nice"

The first page revealed this: 

 "This is just the start turn the page"

This is the first entry:

"Today my mom and dad wher being the best mom and dad in the world"


Oh, my heart. 

Raising kids is full of endings and beginnings.  I find I mourn the endings more than I value the beginnings: when he lost his front baby teeth or when he stopped holding my hand in public, for example.  To me these seemed like innocence lost, the beginning of his pulling away from me. 

But they aren't just endings.  They are the beginnings of the next thing.

Turn the page.



Sunday, February 24, 2013

Dumb Ways To Die (a.k.a How To Survive Day 9 of February Staycation)

Day 9, February staycation, 2013.  What better way to pass the time than to make a music video?  Now you all can have this song stuck in your heads like I have for the past nine days.

You're welcome.



Thursday, February 14, 2013

Valentine

"It's okay, Sweetie," I whisper, bending over to kiss her forehead.  "I'm here, and you're going to be okay."

Greta chokes back a sob, tears streaming down her cheeks. "Okay Momma," she says, looking at me with wide, scared eyes.

~~~~
 
She's home sick.  Because of the blizzard and the subsequent power outage, we've been trapped in this house for six days.

School reopened on Tuesday, and I woke with a spring in my step, happy to have power back and the kids in school.  We'd been on top of each other without electricity or showers for four days, and I was eager to get back to the routine.

I found Greta quietly crying in her bed, holding her head.  "It hurts," she said.  "Everything hurts."

Shhhhh, I said, my heart sinking. It's okay. Just go back to sleep.

I shuffled Finn off to school and mentally rearranged my day.  It's probably just her sinuses, I thought.  Things will go back to normal tomorrow.

That was Tuesday.  Today is Thursday and she's still suffering from crippling waves of nausea, headaches, heartburn and body aches.

She woke up this morning with bright eyes, telling me she finally felt better.

I smiled to myself as I listened to her giggle with Finn while they prepared for school.  I hadn't heard that sound in far too long. 

Everything was fine until she put her backpack on and went out to wait for the bus. I saw her wincing, holding her head, and she turned to me and said, "Oh no, Momma.  It's BACK" and burst into tears.  "I thought I was all better," she sobbed.

She rested her head on my shoulder, shoulders heaving.  "But I WANT to go to school!" she cried.  "What do I do?"

I placed my hand lightly on her forehead, felt the heat rising from her body.  I bit back a heavy sigh and said, "Head on inside, honey.  Obviously you can't go to school yet."

This made her cry louder, and she stumbled indoors, flopped onto the couch and dissolved into hysterics.

I sat in the cold sunshine outside waiting for the bus to pick up Finn, feeling close to tears myself.  Irritation welled up inside.  I just want to have a normal day, I thought.  I'm behind on everything. This is so aggravating.

Finn spun around in the driveway, laughing.  "Hey Momma!" he yelled.  "Happy Valentine's Day!"

My heart lurched: Valentine's Day?  We've been so discombobulated I totally forgot.

Valentine's Day. I'm transported back one year to the day.  At this time one year ago I was staggering  to the car, heading in to the city for my very last radiation treatment. Nausea and searing pain were the norm.  A good day meant that I was able to sit up in bed and talk to my kids.  I hadn't eaten solid food in weeks, getting nutrition exclusively through my feeding tube. I weighed 129 pounds - about what I weighed in 8th grade - and my neck was a flaming, oozing red sore both inside and out.

I remembered with a rolling feeling in my gut how scared I was that day.  The idea of being locked into that head mask one more time, to submit to the poisonous, healing rays, was almost too much to bear.  Almost.

Finn laughed and waved to me before he got on the bus, and I waved back with tears in my eyes, grateful for the warmth of the sun's rays on a cold day and the feeling of my sturdy, healthy body.

~~~~

I wipe her damp bangs off her forehead and rub her sore back.

"Thank you, Momma," she whispers, her eyes closing.  "Thank you for taking care of me."

I rest my head on the pillow beside her.  "That's what I'm here for," I smile.




Saturday, December 22, 2012

The Ghosts We Knew ~ Absorbing Tragedy and Finding Gratitude

I'm not talking about it much. I don't even think I'm actively thinking about it much, but I know I'm more profoundly effected by last Friday's CT tragedy than I'm even letting myself understand.

I sat down to do a holiday post - some funny anecdotes, cute things the kids have said, how Finn still fervently believes and I think Greta knows-but-doesn't-want-to-know.

I couldn't write a word. My head was full of all those people facing this season without their kids.

And I felt scared right down to my bones.

I'm personalizing it a little bit, I can't help it.  Losing my Dad last year brings up all sorts of stuff when sudden deaths hit (not to say this is the same - it isn't - but it's one of the "cage rattling" experiences where you realize life turns on a dime).

This time last year I had just started chemo and radiation and I have so much to be grateful for. SO MUCH.

But still, those families in CT won't leave my mind. I'm praying a lot; even when I don't even realize it.

So I didn't set out to do a "sad" post about loss. It just came.  Anyone who has ever lost a loved one knows what I mean about holidays being a little harder. I start imagining the parents of those children and my brain kind of shuts down - SLAM - and then on some odd level I feel unworthy of happiness. Even though I know that's selfish fear talking, I can't help it.

I'm holding my kids extra tight, praying extra hard, wishing I could have assurances that none of us are ever granted.

So tonight I leave you with this song my Mumford & Sons (please listen - it's gorgeous - but you may want a tissue handy) called "The Ghosts We Knew".  Here are the lyrics, and then down below is a widget where you can listen to them as you read.  Send some prayers to those suffering this year. Wallow in all you have, and hug your loved ones tight.

The Ghosts We Knew, by Mumford & Sons:

You saw my pain, washed out in the rain
Broken glass, saw the blood run from my veins
But you saw no fault no cracks in my heart
And you knelt beside my hope torn apart
But the ghosts that we knew will flicker from view
And we'll live a long life
So give me hope in the darkness that I will see the light
Cause oh they gave me such a fright
But I will hold as long as you like
Just promise me we'll be alright

So lead me back
Turn south from that place
And close my eyes to my recent disgrace
Cause you know my call
And we'll share my all
And our children come, they will hear me roar
So give me hope in the darkness that I will see the light
Cause oh they gave me such a fright
But I will hold as long as you like
Just promise me that we'll be alright

But hold me still bury my heart on the cold
And hold me still bury my heart next to yours

So give me hope in the darkness that I will see the light
Cause oh they gave me such a fright
And I will hold on with all of my might
Just promise me that we'll be alright

But the ghosts that we knew will flicker from view
And we'll live a long life


Monday, December 10, 2012

In Which I Behave Badly

I take a deep breath and try to calm myself.

It's one of those Sundays where everything seems to collide in just the wrong way. Both my husband and I are very busy with work. The kids are full of holiday craziness and visions of sugarplums and dancing about asking to decorate the tree, go shopping for presents, make a gingerbread house, play a game.

Our internet crashed. Actually it crashed right in the beginning of a movie date my husband and I desperately needed on Saturday night. We were all snuggled up under a blanket in front of a roaring fire and - ziiiiiiiip.  No more Meryl Streep and Tommy Lee Jones working on their marriage in Hope Springs.

It was only 8pm, but it was the final straw for me, and I went to bed. Sometimes that's the only way to end a day that is two steps forward and three steps back.

I have a confession to make (Mom - I'm sorry), but I can't stand decorating for Christmas. I love the end result, of course I do, but I'm not at my best schlepping boxes up from the cellar and wrangling with lights and my "is the tree straight" obsessed husband.  I simply don't enjoy it.  I don't  know how this happened, because my Mom is, hands down, the best Christmas decorator ever. No joke.

There, I got that off my chest. Feel free to criticize me all you want; it's just my truth.

Having to decorate becomes especially difficult when we're all so busy.  I think about priorities, how we're always going to be busy, and try to wrench myself back into the moment, but then I sneak off to finish a few orders and my printer breaks.

How do I handle this?

I have a complete and total foot-stomping tear streaked tantrum.  We're talking Toddler Tantrum.

Steve calmly steers me upstairs and tells me to lie down, take a few breaths, and come back down when I have composed myself, like I'm some kind of child.  Oh. Wait. Yeah.

I lie in my bed and stare angrily at the ceiling. It's too much, I think.  All the little details and permission slips and school performances and activities and play dates and homework and running a small business, and... and ... and ......

I close my eyes, stubborn tears still squeezing out from behind my squinched up eyelids.

One year ago I was gearing up to start chemotherapy and radiation. One year ago I would have done ANYTHING to have these petty little problems that aren't even problems.  I just have a terrible attitude because I want attention. I've been working my you-know-what off lately and the hamster wheel never stops and I just want someone to say "GREAT JOB, MOMMA!".

Now I know how Finn feels.  Sometimes bad attention is still attention.

I place my hands over my heart and count its beats; a trick I learned in my cancer support group, and in yoga.  I feel my life blood pulse through my fingers, and with each beat I say a little tiny prayer:  thank you.

Once my tears have dried and my heart and mind are back in the moment - this moment right here - I head downstairs, feeling blessed. Finally.



Thursday, December 6, 2012

Truthful Thursday - Parenting a Special Needs Child


***Submitted by Anonymous

A note from Ellie: it takes so much courage to write a piece like this - every mother, not just mothers of a special needs child - can identify with a pang of shame about their kid.  NO comments that are inflammatory in any way will be tolerated.  This is a community of empathy and understanding, so please offer your support.  Thank you.




This morning, I drove around town looking for day cares for my younger daughter.  A few years ago, this process was very easy. Back then, I was searching for a spot for my now-3 year old, a clever and witty kid who has always exceeded any goal put before her. Back then, I bounded in to each Director’s office, declared that we needed a daycare, and was met with a welcome party. They practically begged me to enroll.

But with my 1 year old, the process is much more difficult and brings about very painful feelings of shame. My younger daughter is beautiful, smiley, and loving. She will reach out to any stranger and quickly bury her face in his shoulder. She will stand at her sister’s train table and laugh with glee at just the experience of being alive. She teaches me about true happiness. But she also has a very rare syndrome, one that causes developmental delays along with some health problems.

So at 15 months old, she isn’t walking or talking. I’m quick to say that she’s cruising, but she really isn’t. Cruising signifies gripping onto the couch and moving her way along. She’s taken a step or two, but I certainly wouldn’t call it cruising.

Today, when I met with each successive Director at another prospective daycare, I bragged that she was cruising. You see, they won’t move her into the toddler room until she’s walking. She needs to be “steady on her feet and confident.” Until she reaches that milestone, they’ll keep her in the infant room with 6 week old babies. However, sitting in an infant room all day will impede her development because she needs to learn from the older kids. But the Directors are adamant that any child who isn’t walking needs to be with the babies.

 All day long, I’ve had to explain her delay – had to reveal her syndrome. And I felt such shame. I’ve gotten way past the point of blaming her for any of this. I’ve moved well beyond those heart-wrenching and hurtful feelings of only a year ago. But I had to reveal that my child isn’t perfect. I had to explain the characteristics of her syndrome and then, upon seeing one worried look after another, had to follow-up with a happy-faced, bubbly disclaimer: “She’s doing so well though! She’s practically a typical child!” At one point, I said, “You wouldn’t even know there was anything wrong with her!”

That’s when one of the Directors looked at me kindly and said, “There isn’t anything wrong with her.”

I felt such shame. I’m supposed to be her unconditionally-loving mother. And I need someone else, a stranger, to tell me that there isn’t anything wrong with my child?

 But…if there isn’t anything wrong with her, then why did the Director then say: “Of course, I’ve never heard of this syndrome. So I’ll need to check with HR…”? Her sentence trailed off, but it’s obvious that she meant “…before we accept your application.”

I want so badly to accept my daughter for who she is. I don’t want to feel any shame or embarrassment when talking about her. But every time I have to beg to get her into another daycare, I feel that I’m explaining away who she is. I’m asking strangers for forgiveness over the needs of my own, incredibly special child. 

Tuesday, November 13, 2012

Cancer: One Year Later. A Year In Pictures

Almost a year ago, I wrote this about the day I found out I had cancer.

Tomorrow, November 14th, my daughter goes back to school after her tonsillectomy, exactly one year from the day I had my tonsillectomy and the doctors found the tumor.

The Universe has a strange sense of humor, sometimes.

Last November 14th, I had four days left of blissful ignorance of not-knowing.  In my heart, I was pretty sure I knew, but there was still the chance my heart was wrong.

So, a year ago I was living out my last pre-cancer days, and it's got me thinking about how my life has changed.  How I've changed.

I say my last pre-cancer days, because I understand, now, that even if I stay in remission for the rest of my life, that I am forever changed by the diagnosis.  Cancer is no longer a death sentence, thank God, but it is a life sentence, of sorts.  Because once you've had cancer you are never the same again.

I looked back over the past year and a huge part of me didn't understand how we got through it.

Then last week I was searching through some pictures - looking for photos for Finn's birthday video - and I found some memories I had forgotten about. Things that at the time I swore I'd never, ever forget.

There was the one taken the day I had my feeding tube put in:



I was scared and feeling about as low as I had during the whole cancer ordeal that day.  I was on the verge of tears, full of fear, and my cell phone beeped that I had a message.  Heather and some amazing friends had put together this video for me. It arrived - quite literally - just exactly when I needed it




There was a picture taken of my neck at the worst of the radiation:


I remember I chose not to post this at the time it was taken, because even I didn't want to acknowledge how badly I felt (the white bits are pieces of a compress I had on it to cool it down).

As I found myself staring, awestruck, at this picture, I remembered exactly how I got through it.

I was supported by so many people - friends who brought meals, gave rides, the unflagging support of my mother, even in the early months of adjusting to life without my Dad.  Steve's steadfast and loving presence, constantly asking: what can I do? what do you need?  Help from amazing, loving babysitters that took care of my kids just like I would have. Maybe even better.

And then, of course there were the kids.  Their certainty that I would be okay, because I had to be okay, fueled my strength to fight when I could, and let go when I should.  They were constant "you can do it" cheerleaders. Kids have such a pure way of processing difficulty, and it rubbed off on me, helped me fight the battle one moment at a time.

There were some pictures of the little notes Greta would leave me in my prayer box, to lift my spirits and give me strength during the worst of days:



Finn and Greta, with the help of a babysitter (Hi Lindsey if you're reading this!) made a pillow case with their picture on it, and colored it with loving messages and words of hope



Lindsey and the kids also put together a scrapbook to cheer me up:


When Lindsey went back to college, I was scared that everything was going to fall apart, because she left just as my treatments were getting really tough.  But the Universe was still smiling on me, and along came Nikki, who was just as fabulous as Lindsey and cared for the kids every afternoon for weeks:

Nikki and the kids

And then there was "the chart"; a spreadsheet Steve put together (complete with graphics) to track my medications, my mood, my pain scale, my food intake and my, er, regularity (yes, that is a poop giving a thumbs up you see there in the upper right hand corner):



I still have the cards of support and encouragement I received from friends and family.  I read through them every now and then, when I'm having a moment of doubt, or fear, before a doctor's appointment or a scan, and I remember that I didn't get through cancer.

WE did.

That's how cancer changed me the most. I evolved from someone who had to fight all her own battles, be in control of as much of her life as she could (even though I would have sworn to you on a stack of Bibles that I was not this way), to someone who was humbled and grateful for the all the love and support.

I admit, I fought it at first.  I didn't want to be the sick person, who couldn't care for her family, cook a meal or drive herself.

Once the pain and fatigue kicked in full force, though, I was overcome with gratitude.  There is NO WAY I could have gotten through everything without all the support.

One last picture, taken last Thanksgiving. I knew I had cancer when this was taken, but that week we had heard the words "treatable and curable", and so we were filled with hope, despite the underlying fear.  I look into our faces and part of me thinks: thank God we didn't know what was coming.  But another part me looks back and thinks:  you have no idea, yet, how many people love you and your family. You don't appreciate, yet, how lucky you really are.





Today, I do.  I know how lucky we are.  I live more in the moment than I ever have, even though it took a boatload of fear, anxiety and resistance to get there.

I think this quote sums it up well:





Friday, November 9, 2012

Seven - A Birthday Video for Finn

He came running up the driveway yesterday, after getting off the bus, his backpack bouncing behind him.

"MOMMA!"  he yells, a big grin on his face. "I GROWED!"

I embraced him as he chattered on excitedly, "I used to be the second tallest in the class, and now suddenly today I'm TALLEST!"

This doesn't surprise me. At 6 years and 364 days old, he weighs over 50 pounds and is over 4 feet tall. He wears a size 3 shoe.

Long gone are the days of his cute little accent, where Rs were Ws.  We called it his Boston accent.  I miss it.

He is quick with a smile and a joke, and seems to make friends wherever he goes.  It doesn't matter if we're at church, the supermarket, the playground or just any old store, he always whispers to me "look over there, Momma, I know her!"  For all of his gregariousness, he's shy.  Kids rush up to give him a hug, or a hello, and he giggles and hides behind my legs.

Despite his size, he's still a snuggle-bug. He manages to curl up all 50" of himself into my lap and rest his head on my shoulder with regularity.

He inherited his impishness from his Dad, and his love for shortcuts from his Mom.  He is the King of "it wasn't me!".  I can literally catch him in the act of doing something wrong, like putting his feet on the dinner table, and he'll peer at me over his grimy bare toes and say with as much innocence as he can muster, "I'm NOT doing it, Momma!"

He has a huge heart, always looking out for a kid who seems nervous, shy or anxious. He's loyal and reliable, always quick to give people the benefit of the doubt.

He loves to laugh.  This morning I wished him a Happy Birthday, and he told me about a dream he had last night where he opened a huge present and it was a box full of gold.  Then he threw his head back, laughed and said, "but that's not likely to happen, is it?"

Yesterday he said, with a sly grin on his face, "There's some sort of smell situation going on in this house, and I'm trying to get to the bottom of it."

I wondered, when he was born, if I'd be able to raise a boy with as much confidence as I raise Greta. Well, at least I got her, even when my parenting skills feel rusty.

But it turns out I get him, too.  He wears his heart on his sleeve, so quick to love and laugh, and I feel like he's the one teaching me, most of the time. How to take things in stride, not make more of anything than I need to.

He loves to rub my arm and say, "Everything's okay, Momma.  I promise."  I look into his big, grinning face and I know he's right.

Everything is just the way it's supposed to be.

Happy 7th Birthday, Finn.  We love you to pieces:



Thursday, November 8, 2012

Failed Pregnancies, Fear and New Babies in Arms - TRIGGER WARNING

***Submitted by S

TRIGGER WARNING:  this post is about pregnancy lo
ss




I don’t want to talk about being pregnant. 

My pregnancies were not particularly enjoyable experiences. I don’t want to talk about the swelling, the hip pain, or the hemorrhoids; the nausea, the enormous boobs, or the constant fatigue.

I don’t want to talk about the fear of loss, of how it felt to have my tiny baby swish inside me, while being afraid that something might pull us apart.
I don’t want to think about my friend's baby who died late in pregnancy when his umbilical cord wrapped too tightly around his neck, or of the babies who simply fall out through a weak cervix, too young to survive.

The three pregnancies my husband and I lost all happened very early- around week five. The doctor referred to them as “failed pregnancies,” and not miscarriages.
Two of these happened before our first child, Emberly, was conceived, and were for me more about the loss of the title of “mother,” than the actual loss of a child. For the small window of time that I saw two lines on the stick, I had the potential to become something great.

And then that potential was gone, washed down the toilet.
When I was pregnant with Emberly, part of me didn’t want a baby shower. I was afraid that something bad might happen. I didn’t want to have a room full of gifts that I might have to return, reminding me of how close I had come.

The part of me that held onto hope was bigger, though, and I did have one. Afterward, I set up the crib and put away the baby things. 
One friend had brought me some scented pouches that I put in Emberly’s closet. When I think about this time of waiting, with my swollen belly and the hope of new life kicking inside me, I see an empty room, sunlight filtering through the windows, a crib just waiting for a tiny newborn to take up residence, and I smell the warm and powdery sweetness of those pouches.
Emberly came. When the doctor handed her to me, wet, with a towel wrapped around her, she looked right at me. I touched her tiny purple fingers, and rubbed the rough towel against her soft skin to wipe off some of the wetness. I looked into the eyes of my daughter, and in that moment, became a mother.

Later, I birthed a son, Breckin, and became a new kind of mother. 
I have three sisters and no brothers, so I imagined having a boy would be difficult or strange. So far, it isn't. Breckin didn't look into my eyes, but he did started nursing the night he was born, and he and I were able to bond in a way that Emberly and I hadn't.
I didn’t want to talk about these struggles, but I think I needed to. 

They brought me to where I am- a place that is so wonderful, and irritating, and all-encompassing, and that makes me vulnerable to so much more loss- yet that I wouldn’t leave for anything in the world. 

I am a mother. 

And that is something I want to talk about.

Sunday, November 4, 2012

On Being The Mom

"Okay, Mom," chirps the nurse, "here are your scrubs; you can go change there, with Greta, and meet us in the prep room shortly".

We're up early (5:45am) for Greta's tonsillectomy and adenoidectomy, which is taking place back at the very same hospital where I had my cancer related surgeries over the past year.  It's one of the best hospitals in the world, and for this I am grateful, but the flashbacks are still startling.  

I help Greta into a cute hospital johnny with 'tired little tiger' written all over it.  She is quiet, contemplative, but doesn't seem nervous. 

I pull on my blue scrubs and she giggles. "Doctor Mom," she says.

Trying to keep the atmosphere light, but realistic, I prattle on about what she should expect. The "rolling bed" (stretcher) and the bright lights of the Operating Room.   How the scariest part is lying on the operating table waiting for the anesthesia to kick in.  How it feels like you just blink your eyes and it's over.  

"Okay, Mom," she whispers. I can tell the nerves are building, but she's handling them like a champ.

"Are you ready, Mom?" the nurse chirps again.  "Let's get her onto this comfy rolling bed and head on down to the OR."

Only one parent is allowed to scrub up and go into the operating room. Steve waits in the same waiting room he sat and waited for me, three times.  We picked me to accompany her because I know the drill so well, but I have to work hard to keep my poker face. 

There is a slight delay before they can wheel her down the hall, so we stand there for about five minutes - Greta on the stretcher and me silently holding her hand.  I hear a sniff and look down to see silent tears running down her face.

"It's okay to be scared," I say, leaning close.  

She nods.  

"I was scared at this point, too, so I remembered that I was in the best hospital in the whole world for operations on ears, noses and throats.  People come from all around just to have surgery here."

She wipes her eyes. "Even Egypt?"

"Yes, even Egypt," I reply.

"What about Transylvania?" she quips, and I look down to see a sly grin on her face.  My heart swells at her bravery, and how she uses humor to deflect fear, just like her Momma.

Eventually we roll on down the hall, and I can feel her shaking a little.  Doubts creep into my mind; is this surgery really necessary?  I know in my heart it is, but now that we're here I want to say never mind.  Having had my tonsils out so recently, I know what recovery is like (albeit easier for kids) and voluntarily putting my kid through pain feels a bit barbaric to me at the moment.

"Okay, Mom," says the anesthesiologist.  "I need to speak to you over here for a sec."   

It occurs to me that I've been addressed exclusively as 'Mom' for the past hour.

I'm the Mom.

When did I become the Mom?  Suddenly it seems impossible that I'm in charge. Of anything, letting alone electing to let my kid have surgery.  

"She'll roll her eyes back and convulse a bit when the anesthesia kicks in," she explains. "That's totally normal."

My stomach does flip-flops. I want to run from the room.  I don't know that I can do this. I know I will, but I don't want to.  

"Once she's under you can take her stuffed animal and go to the waiting room," she explains.  "Don't worry, Mom. You're doing great."

I step over and hold Greta's hand as they slip the mask over her face and start the flow of cherry-flavored anesthesia.  She's awake longer than I thought she'd be -- first looking uncertainly at me, then blinking slowly, and then her eyes roll back and she gives a shudder.  

And she's out. 

Logically, I know she's going to be okay.  But witnessing that makes it seem like she just died right in front of me.  

"She's just fine, Mom," says the nurse.  "We'll be out to let you know how it went shortly."

I grab Bushy the Dog and head out to the waiting room.  On my way back down the hall I think of the parents with chronically ill kids who have to do this all the time. I think of how much better Greta will feel when this is all over and she's healed, how much better she will sleep.  I grope for gratitude, because I can feel myself slipping into a selfish kind of fear.  

Everywhere I look are memories of my own ordeal, and I have to remind myself that was my ordeal, not Greta's, and today is about her, not me.

Fifty minutes later I'm next to her in the recovery area as her eyes flutter open.  

"When will the operation happen?" she asks, and I smile and tell her I said the same thing when I came out of anesthesia.  

"It's all over, and you did great," I tell her.  "All the nurses said so."

She clutches Bushy in one hand and my hand in the other as she drifts in and out of sleep. 

"Good job, Mom," says the nurse.

I'm the Mom. I'm her Mom.  I get to be her Mom.  

I am so lucky.






Thursday, October 25, 2012

Aftermath - Truthful Thursdays - TRIGGER Warning




TRIGGER WARNING:  This post is about suicide, so if you feel this may be a trigger for you - for ANY reason - please know in advance this is a first hand account of someone who lost a loved one to suicide and don't read it if it will be too hard.

***Submitted by Kathryn, who blogs at This Could Get Ugly


In a meeting, my phone rings.  

I see it's my oldest son and I push "silent", I'll call him back shortly.  He calls again as we're wrapping up, I joke, let me go call my son back, he probably needs money.  I text him "Text me, in a meeting".  

He answers "Call me please". 

Back at my desk, I call my boy.  "Mom, I don't know how to say this any other way.  Dad shot himself."  So calm, he's so calm, not true, that's not true, who told you that, WHO TOLD YOU THAT?  He's on his way to his father's house, no don't come, I'll call you, don't come, I'm fine, I'll call you mom.  

The phone drops from my hand.  

Coworkers rush to my side, lay their hands on me as I sob helplessly, I can't speak, can't tell them, what's wrong, what's wrong, oh my God please let him be alive but I know he's not alive, I know it in my heart that is broken, broken for my son and for his father who lost the battle with the demons in his brain.  

For how alone I know he felt at the moment he pulled the trigger and left us awash in grief and regret, why didn't I know this?  Why didn't you call me, you always called me when you needed to talk oh god why didn't you call me this time?  

I spoke to him on Monday, now it’s Wednesday and he’s dead. 

Watch my son go from a boy to a man in the space of hours.  It falls to him to plan his father's funeral because his stepmother can't, she wants him cremated immediately with no goodbyes.  This cannot happen, his father needs to see him, his mother, his sister...we need to see him.  We need to send him off.  We need to gather and weep and mourn and so he will stand up and say "My father will have a funeral", and she will agree.  She's devastated, I understand the impulse to put this behind her but it's my son and his grandfather I'm thinking of now.  

Have I been a good enough mother to my son, have I helped him grow into a young man who can deal with his father’s suicide and the aftermath, the death arrangements?  I don’t see him cry, ever…did I teach my son not to cry?  Please God let him not feel he has to hold all of this inside, don’t let my son be like his father who never projected any emotion but anger into the world until it literally killed him.  Please don’t let him be a man who can’t stand to deal with the emotions of others, he doesn’t let his friends come to the funeral because he doesn’t want them fussing over him, doesn’t want to deal with emotion.  Cannot go up and comfort his grandfather as he weeps over his dead son’s body in the coffin.  

“No, Mom, I can’t do it, I can’t handle the crying.”  Maybe my job as a mother isn’t done, or maybe I didn’t do it right.  My heart clenches…my boy is not whole.  His father is dead.  I want him to have the gift of grief, of breaking down in uncontrolled, cleansing  tears when it’s called for.  I can’t give him this…I can rarely give it to myself.   It’s so hard to accept that maybe it’s just who he is, that he still has growing to do as a man, and that my shame is perhaps misplaced.  He is not just me, he’s his father, too, and himself.  I could not bear to go to funerals at his age, as we get older we realize what a necessity it is despite the pain and awkwardness and crying people everywhere.  

The days pass in a twilight of unreality, a cloak of sadness.  Wake up every day, thank God I can sleep but the problem with that is waking up every day to knowing that my friend, my son's father, is dead...yes, it's still true.  Every day a new problem for my son to navigate, it falls to me to help him with his father's funeral and I gladly do it, I wish I could take this burden off of him but I have no standing, no authority...I was not his wife.  I will not do anything to cause her further pain and so I tread carefully between his father's family with whom I am still close, and his wife.  Sit with his 10 year old daughter, my son's half-sister, while they go into the funeral home to make plans...hold her while she cries, "I don't have a daddy anymore!"  

No baby girl, but your daddy loved you so much, he had  a smile in his voice every time he said your name, he was so proud of you, so proud, your daddy loved you and you will always have him, he's just gone away now but you have him.  

Smile at her questions, children are so honest.  "Were you married to my daddy?"  No, baby, your daddy was only ever married to your mommy. "Why does J (my five year old) live with you and not us?"  

He has a different daddy than you and your brother, he lives with his daddy and me.  Heart....broken.  I know if he could see this, the devastation of his children, he would not have done what he did, he loved these kids so much.  I know he couldn't see anything but the pain he thought was all that was left of his life.  This hurts my heart as much as his being gone from us now, why didn’t I know this?  Things run through my mind that I could have done, why didn’t I go to his job and make him go to the doctor, why didn’t I take him to the hospital, why didn’t I call his wife and ask her what was wrong with him, he seems depressed.  Why why why? There are no answers to any of our questions, and there never will be.  

We get through the days, we say our goodbyes.  His sister and I read poetry at his funeral.  My son gives his father a beautiful eulogy.  I am so very proud of my son, and almost unbearably sad that he has to do this. 
We are driving in the car on Tuesday, the first day we have alone since all the family has departed, he wants to show me the apartment he’s going to move into soon.  I can’t think right now about how it will feel when he doesn’t live here anymore, I’m too raw with grief over his father to contemplate how that will feel and anyway I know that it’s all part of the same thing.  I can’t cling to him now because of this, he needs to make his own way in the world. 

The first thing we do when we get in the car is turn on Third Eye Blind, the self-titled album.  He says “I’ve been playing this every day, it’s got me through ”.  Feel my heart lift that my son has found comfort and release the same way that I have these last few days, listening to our favorite music.  I tell him that I wanted to play this at his dad’s funeral but we both know the family wouldn’t have understood.  

My poor, lost friend. 

I am left wondering what I missed, what happened, what I could have done.  I feel so guilty that I didn’t know you would do this, that the conversations we were having were your way of saying goodbye, not asking me how to change things you had so much regret about.  My guilt at not being able to keep you from leaving this world...I don’t know what to do with that.  None of us put the gun in your hand, but I feel like I should have KNOWN.  And I feel shame that whenever I think about how you died, I feel not only the loss of you, and the loss our son is experiencing, but also a deep gratitude that you didn’t take anyone else with you; that you were just a suicide, horrible enough, but thank God not a murder-suicide.  I can’t help those feelings but they make me feel so small. 

The ache I feel for how you left us, for how you couldn’t see any other way, will stay with me as long as I live.  I will watch over our son, and your daughter.  

I will say your name every day, hoping that one day you’ll answer.